Search This Blog!

Thursday, July 20, 2017

A dream among many

So, tonight, since about midnight, I was playing a video game on my PS4 console system.  I was enjoying myself for the most part, but I felt really... alone.  Sure, I have a friend who plays the game as well, but I never like to bother him, because he's playing a different faction, for one.  I figure he's doing his own thing, so why should I bother him for quests or missions for my own benefit?  The answer is, I don't.  And two, it's not at all that I am against sharing loot on enemies killed, but I have honestly no idea what might be within my level of interest or his.

Then I started to think, "You know what would make playing video games even better?  It would be nice to work, and then earn my time playing the video games in question."  You know?  Doing a job, getting paid, and being able to pay bills, and then have some money left over to indulge in said games."

Maybe I need to stay in school, if nothing else to feel like I earned my time to play my video games.  Mom says I should consider something with graphic art design with video games, but I'm not an artist.  My art creations are awful, at best.  Add to that, I've heard a lot of horror stories about game testers, designers, etc being crammed to finish a product by a deadline.  The last thing I need is to be given a stressful work environment.

But then I thought, "What could I do?"  I mean, I love music, but I'm not creative there, either.  I want music to be a hobby, and not a job.  And just like game design, there are deadlines that make the job stressful.

I think if I could spend my time writing, and getting paid for it, that might be a better use of my time.  I love to write.  As long as it's a topic I find interesting.  Just don't ask me to present it.  I feel like I don't have a knack for presentation, but I know that not many careers exist where writing doesn't have its own deadlines and stressors. 

Maybe there are no careers fit me comfortably.  Maybe that's the point.  When we all get a job for the first time, it's always going out of our comfort zone.

I'm just so tired of feeling cooped up in this apartment, having only doctor appointment after doctor appointment routine, and the days where we have absolutely none of that going on, I tend to sleep all day long, because if I get up, my mother will undoubtedly want to go somewhere either for food, or to get "supplies" for the dog that apparently can't wait another day.

Then I started to think about things like my 7pc. drum set that I have on hold.  I thought about once I have paid in full for it, where would I put it?  Storage space would be at least $75-$100 a month.  And as it is with two payday loans outstanding, plus trying to pay dear older brother for the truck issues, I feel like it would be a financial burden unless I had a house.

And that brought up thoughts about even having a house.  My whole thought process when I started going to college was so that one day, I could get off of SSDI, make some decent amount of money for a nice and small house with enough rooms for a game room/entertainment room, a music room, and then my bedroom with a living and dining room area.  Plus a two car garage.

That was my dream when I started, but having persistent migraine headaches, having persistent infections (specifically MRSA), and having outstanding debt just makes the dream of owning a house seem like a fairy tale more than a dream.  And it's not a happy fairy tale ending, because it is certainly fictional.

Living with my mother has brought out the cynic in me.  I've always tried staying hopeful, but lately, there are days when I stay in bed all day long, and my thoughts are "Why should I get out of bed?  What is it that we're going to do that's anywhere near fun, except for mom to go shopping while I babysit her dog while in either a hot car, or a cold car depending on the weather. I've not only become a live-in aide to everything, but I've become dogsitter-in-chief because, *drum roll please*, she has no one else to do it. 

Oh. Every once in a while, she (mom) can coax her part time bf to watch the dog, but that has consequences, especially for the dog.  He gives her table scraps even though mom and I have strongly discouraged this behavior.  We end up with the vet bill while he gets to go home and take care of his own drama.

Me?  I have no one else other than Mom to hang out with, and that's the most fucking depressing thing to realize.  No matter where I go, no matter what I do, there's mom.  Even when I'm in class, she constantly texts me about weather updates, and keeps questioning if I should have scheduled ride.

And that in itself presents problems because she strongly encouraged me to get recertified BEFORE my time was up, and during the test she kept texting and calling me DURING RTD's tests.  So, I was a little perturbed by it, and as a result my criteria for rides are now restricted from dusk to dawn. 

Add to that, I'm almost always a passenger in my own vehicle that I own, and I almost never get to drive unless mom has a serious problem.  And even then, she doesn't trust that I can effectively drive.  And that was BEFORE I had my blind eye removed.  Now I barely drive at all. 

Which brings me back to days when I stay in bed, I think to myself "Why?" And "Where will I be traveling to as a passenger in my own fucking vehicle?"  It's just fucking depressing. 

Which leads me to thinking all of my dreams and hopes have been coming to a grinding halt because of A) medical problems that are persistent, B) an overbearing mother who can't for once let me be independent, and C) I feel as though my soul dies a little every day that I'm not in control of even my own fucking vehicle, or in charge of what's best for me.

This is why there are days when I just say to myself "FUCK IT!  I'm just staying in bed unless I get to go somewhere on my own without mom, without the dog, without being told to do anything." And God forbid I go to a fast food place and the instant I come home to eat, it's "Why didn't you call me and ask what I wanted?"  Of course, this would imply that on any given occasion that I'm out and about, I MUST consider what my mother might want, even though I know that later on she might regret her choices in food.  So, I have to avoid bringing home any food at all, no evidence, no trace that I went and indulged for myself and myself only.  Yes, that would mean I did something selfish.  And maybe because I wanted to save money. 

My point being that I'm never truly alone when I'm out and about driving to where I want to go, because mom is almost always a phone call or text away from saying she needs (wants) something. 

Going back to school has been on mind because of the persistent health problems.  I was told that instead of using up all of my deferments, I could opt for income-driven repayment plan, which would effectively make my payments $0/mo.  But then what happens when I want to resume taking classes?  Will I be able to?  Or will I still have the mom problem?  Where everything I do is completely a choice, which it is, but going to school is what I WANT and NEED if I want a good paying JOB in the future, so it's kind of a HAVE TO kind of thing that she doesn't understand.  Some people go even if their completely sick, and persevere.  A little snow sprinkle, and mom loses her shit over whether I should even go to class at all.

I'm just so sick of this shit, and each day I'm not fulfilling any realistic dreams, a little of me dies a little inside.  And mom does not make it any better.  Quite the opposite, she makes it worse.

Thursday, July 13, 2017

Some thoughts here and there on my mind

I hate to do it, but lying to mom about what my psychologist doctor said makes me feel a little relieved.  Now, I just need to get a message to my therapist on the 25th about the lie, and why it's important that we maintain that lie.  Well, to be fair, it was not a lie.  More like an exaggeration of the truth.  And the truth is, I don't need more sleep meds.  What I need is less "Mom" interruptions at night, especially when I've earned my free time to do what I want, when I want to do it, and especially when the next day we have absolutely no appointments or errands to run.  Why is it that I should have to lie/exaggerate to mom to be less of a pain in my ass?  And why is it that I feel relieved when she accepts the lie? 

As both the doctor and the therapist have both put it, mom brings an air of anxiety that I don't need.  She'll bring up problems that her friends or family members have, as though I care about their troubles.  I mean, it's not that I'm that kind of asshole.  I just don't care for drama.  It's just not me, but unfortunately she uses me the same way her friends and family have used her, like a punching bag.

We have tried the boundaries thing where I say "No more unnecessary gossip, unless there is an extreme 911 emergency, after 11pm."  At that point, I cease to care at all about anyone else's troubles as though they were my own.  And to be honest, even before that gossip curfew, whenever she brings up what her mom or sisters or brother say, or if it's from my own brother, or if it has to do with her BF's family drama issues, I tend to think to myself, "And why should I care?  It's not even my problem.  Not even remotely my problem.  Or hers."  It's as though she takes everyone's drama issues and soaks it all up like a sponge. 

You want to know why none of her family members, my brother, or her boyfriend have ever called me or texted me their drama issues at any given point?  It's because I have the chutzpah to say, in no uncertain terms, "It's not my problem.  I can give suggestions to help you, but I can't be the one to hold your hand while you stumble upon every obstacle.  I have my own problems to worry about, and that means there is no vacancy in my mind for your baggage."

Well, especially if it were my own brother.  In fact, my therapist this last Monday 7/10/2017, she offered to mediate a sort of "peace treaty" between myself and my older brother so that if we (mom and I) did decide to move back to Las Vegas, we might be able to live with my older brother.  I told the therapist if she can persuade my mother to agree to such a thing, I'm open to the idea, but I have little to no faith that mom would agree to such a negotiation with my older brother knowing our family history.

Sure enough, after her appointment with the same therapist I go to, it became clear to me that she told the therapist, and I'm only guessing here, that it wouldn't be possible.  There exists too much animosity with my brother and I, and to some extent between mom and my older brother as well.  We can only "tolerate" him, but his narcisstic personality is so staunchly part of his mannerisms that he would never agree to any kind of sincere apology or reconciliation.  This is not me being pessimistic about our relationship as brothers, it's a matter of fact and of history.

Anyway, to go back to my original point.  Mom tends to take on her friends and family drama as though she has to be the problem solver, the peacemaker, everything to them.  Because not a single one of them would a) know how or where to start looking for their own solutions, and b) none of them would do the same for her if the roles were reversed.  And the fact that her family members are all self-proclaimed "devout Christians"  makes me annoyed.  Annoyed that such "devout Christian" people would shrug her off, but the moment they need help, they turn to her and dump all their emotional baggage onto her.  And then she turns and does it to me, and on more than one occasion, I have expressed my disinterest to be her "whipping boy" as it were to dump her emotional baggage brought on by people in her family and friends onto me.

Don't misunderstand me, though.  When her best friend died last year, it's been hard on her.  I get it.  Grieving is a process that one does not just "get through" and move on quickly.  It's taken me, personally, over a decade to start to be able to talk about my dad's death without bursting into tears.

So, I offered my support even though her best friend, my aunt (not related), was not my best friend.  Her passing really didn't resonate with me as much as say a family member or relative.  However, the moment mom comes to me and complains about her friends, her family, even her boyfriend, and to some extent her "emotional support" dog, it's like a switch inside my head goes on saying "These are not YOUR problems to fix!"  And "They're not even my problems, either.  Not even remotely!

The kicker?  I talked to the psychologist doctor (who also holds an M.D.) about when mom frequently harasses me at night when I'm playing my video games, or watching TV/movies, sometimes until the morning of the next day, and if mom (or even the doctor should be concerned), the doctor responded with, "You're a grown man.  You can do what you want, and she should not be bothering you about your choices that aren't harming anyone!"

I grinned from ear to ear on that one.  I mean, when I let my sleep come naturally, I sleep better.  Even if it means I am up until 3 or 4am the next day.  When I have to force myself to sleep long before I'm ready because mom feels that if she goes to bed early, so should everyone else, it gets me anxious.  I have a hard time letting myself relax, because of the anxiety of having to acquiesce to her wishes that I sleep on the same schedule as her.

This is why, on more than one occasion, we have both expressed to the therapist our desire to live separately.  It wouldn't mean I would not help her if she called, but being apart might do us both a lot of good, and give both of us a chance to really grow and maybe not depend on each other so heavily.  We're pretty much co-dependent right now, and that's... that's just unhealthy.  Especially when mom likes to find things to complain about. 

Unfortunately, being on a waiting list for section 8 housing is about the worst place to be.  My original thought when I began going to school was to eventually go back to work, even if it's part time only, and to eventually get into a house where I can have my music instruments in a specific room to play on and practice.  That was the dream. 

The truth is, I'm starting to doubt my ability to go to either work or even to school if I'm still having a multitude of existing medical problems.  I still get bad headaches, usually from an infection or from inflammation inside my left eye socket.  I still have days where I feel incredibly sick, and I'm almost always exhausted, even on days when we have done nothing important.  Like nothing at all important.

I'm going to talk with an academic advisor in about 2 weeks to talk about whether I can do another deferment, and what that might mean if I had to reapply to college or not, or if I should consider dropping out.  I know there are consequences either way I go.  If I continue to attend school, and have medical issues arise that interfere with my work (or mom interfering with my work, because she tends to ask about homework as though I'm in high school which makes me feel anxious), I may as well kiss that associate's degree goodbye.  If I drop out, I'm still kissing that degree goodbye, but also I would be required to start paying back my student loans.  Though, because I do not have any gainful employment income, my payments would be $0 per month until I did get a job, if any. 

So, I got a lot of things on my mind, and also this latest thing with mom putting up her guard when I mentioned I found a guy who claims to be a personal trainer who found my note, it just feels like nothing is ever good enough for her.  Like unless I'm as miserable as she feels, she won't be happy.  She can't be happy for me that, by accident, I came across someone willing to help me achieve my goals with regards to exercise.  Instead, like her sisters that she complains about, she's been full of piss and vinegar the past day or so.  It's making me feel annoyed.  Maybe even a little upset that nothing I do is ever good enough or safe enough for me in her eyes.

I guess I would just like it if, for once, she actually listens when I say to her that I'm not interested in the drama factory, I'm not interested in the same things she is, and that maybe I want to take a risk and maybe earn a new friend who happens to be supposedly capable of helping me get into a good routine of exercise.

Maybe I'm just asking for the unreasonable when it comes to mom.

*sigh*  In the words of Bilbo Baggins (Ian Holm), "I need a holiday.  A very long holiday.  And I don't think I shall return.  In fact, I mean not to!"

Thursday, June 22, 2017

An open letter for people who believe those with preexisting conditions and disabilities don't deserve healthcare!

To whom it may concern:

I have recently read an article this morning on June 22nd, 2017 about the Senate's latest version of the “American Health Care Act”, and from what I read, it disgusts me.

I don't know if you understand the true measure of living with a pre-existing condition, a disability of any kind, or have medical issues at all that are considered chronic, but as a recipient of both Medicare and Medicaid, reading that funding may be deeply cut in both programs in favor of “tax cuts” for wealthy Americans while forcing many low income or poor Americans to pay for their own health care when they can't afford to do so is appalling, and we have not even touched on the idea that many insurance companies, without the existing ACA (Affordable Care Act) aka “ObamaCare”, would deny coverage to individuals like myself who have multiple disabilities and preexisting conditions.

I'm going to be 38 years old this August, but I have been a disabled individual my whole life.  I was born with congenital rubella syndrome as a result of my mother coming into contact with a child who had rubella while she was pregnant with me. As a result of that birth disease, I was born blind in one of my eyes, also lower back problems, and had problems in other areas I will not mention here.  Needless to say, doctors at the time did not know how to treat children like myself born with Congenital Rubella Syndrome, and of course at the time I was born, the birth disease was almost unheard of, and was not very much at all common.  So, finding doctors to treat me was difficult for my parents.

Getting through public school was equally difficult as I experienced major harassment from both students and faculty regularly.  From Kindergarten all the way through to my high school graduation day.  My therapist (a mental health professional) believes that as a result of being both harassed and bullied at school, and being in an abusive home while coping with doctor visits and hospital visits extremely frequently, I had developed symptoms of chronic lifelong depression, anxiety, and have expressed symptoms that could be diagnosed as PTSD, or Post Traumatic Stress Disorder.  It's not just for military vets anymore.

And because my late father didn't believe in going to doctors or having health insurance, my mother, while being repeatedly physically and verbally abused by my late father, had to work upwards of two or even three jobs just so I could get treated for problems related to my vision impairment.  Eventually, we (my family and I) got help from the states that we had lived in, primarily California, Colorado, and then Nevada where our family was given financial assistance to help pay for my doctor visits, my 25+ surgeries, mostly on my blind eye to salvage it, and of course counseling to help cope with all of my problems at school, which I can say with experience that it didn't help.

I'm still dealing with many of these issues as an adult.  I still have that vision impairment, being blind in one eye.  There is no treatment available to correct that, except for prosthetics.  And if cuts are made to Medicare and Medicaid as a result of this new Senate repeal of the Affordable Care Act (aka "ObamaCare"), I may not ever get that prosthetic implant and cover.  There are no charities to help pay for a prosthetic cover implant, and my mental health services would be severely impacted, which I feel are important in helping me cope with the reality that I will never have full sight out of my eyes. I'll never have my dream come true, and with the idea of funding being cut from Medicare and Medicaid will almost assuredly kill my lifelong dream of having at least my two eyes look normal.

I don't know what I would have done without having access to mental health services.  But I'm thankful that, for the time being, I can go see a therapist without being heavily billed for it.  And that brings up my next point.

I consider myself lucky to be a recipient of SSDI, Social Security Disability Income, but as you may or may not know, I get only a small cost of living monthly payment from SSDI, and in my case just a little over $1k, which covers my bills barely like my phone service in case I need to call a friend for help or call 911 in an emergency, and then there is my vehicle insurance to pay for plus gas and maintenance, as well as other food, supplies, and medicines. Yes, I can legally drive, which I am thankful for, but in the winter months this is a hazard for me.  Because of it being hazardous, I opt for the Access a Ride bus service, which can take me to and from my doctor appointments, and to and from college.  I'll get to my comment about college in a little while.

So out of that $1k, I pay my regular monthly bills, and then I pay maybe two or three of my doctors in partial payments, because paying their bills in full (sometimes in excess of over $100 or even $250) is not possible without sacrificing either my food, supplies, or my prescription medications (some of which are for chronic pain).  And when I have to use the Access a Ride bus service regularly in the winter, on top of my vehicle insurance, I could easily spend another $50 to $100 on transportation.  That may not sound like a lot, but it could mean sacrificing paying one doctor bill, or my going without some of my medications, etc.

I know, there are many Americans who feel that Social Security Disability Income recipients are “fakers”, people who abuse the system to get “free stuff”.  Well, that may be true for some folks, but not myself.  I tried working both a part time and full time job, and it only made matters worse for my disabilities and preexisting conditions.  I once worked as an “usher” for two movie theaters, doing mostly cleaning, which didn't help my lower back problems.  I also worked as a “Courtesy Clerk”, or more commonly known as a bagboy, which also didn't help my lower back problems, plus plantar fasciitis issues in my feet. Yes, a teen working in a part time job can have preexisting lower back problems stemming from birth, as I was told.  Cracks in my lower back plus a slipping disc.  And the pre-existing plantar fasciitis in both my feet also didn't help my lower back problems at both of those jobs.

So, I traded in working as an usher and a “bagboy” to work in a call center in a technical support capacity.  I wanted to really try to work in mainstream working environments.  This later turned out to be a terrible idea.  I developed massive migraines, anxiety from the stressful work environments, and still having mental health issues stemming from my time in grade school, middle / junior high school, and then of course high school, and then having to cope with my newfound medical problems with painful migraines that just never seemed to go away.  

Upon starting work in a call center capacity from 2001 to 2008, I paid the price of excessive chronic pain, and I lost not one, but two jobs as a result of frequent time off without having any “paid leave” or vacation time left to cover it.  It wouldn't be until as recently as 2016 that I would find out that the excessive pain was the result of multiple eye surgeries causing excessive scar tissue, and I found out that my glaucoma implants installed onto my blind left eye by an ophthalmologist in Las Vegas, NV, were found to be too big for the eye, and because of that, my doctors believed (in their reports) that I had suffered chronic and acute hemorrhaging of the eye, which could explain the extreme chronic pain I felt for many years following my eye surgeries in Las Vegas, NV from 1998 to 1999ish.  

To say I was extremely upset would be an understatement.  And then the idea of trying to obtain a job again also made me very upset and angry, because as a result of being terminated from at least two employers, neither of whom will say in whole honesty why I was dismissed, I cannot get good references.  It would be my word against two former employers who have made it clear that I was unable to work in their company, even though I have a valid reason now for why.

So, when I hear some folks say “If you'd just get a job, you could have health insurance and get stuff paid for.”, as though it's just that easy to get on the phone and try again.  I have to consider what it would mean to be off SSDI, which for now barely gives me money for food, supplies, and payments to doctors and treatments for my aforementioned problems that are both preexisting conditions and disabilities, paying the bills that Medicare and Medicaid could not cover the cost of.  I have to consider what my prospective employer might hear from a former employer, such as:

Prospective employer: “Yes, I would like to verify the employment dates of one Jeffrey Kuntzelman?”

Former employer 1: “Yes, he worked here from [start date] to [finish date], but we had to let him go due to attendance problems.”

Without asking why the attendance problems,

Prospective employer: “Is he rehireable at your company?”

Former employer 1: “No, he would be ineligible to be rehired for any reason.”

And again, they would not ask the why, but assume I was just a completely lazy, poor work ethic individual with no cause for attendance problems.

As I mentioned, I am going to college, but even that has its problems ranging from missing classes, to sometimes being unable to complete the work involved in assignments.  I have even considered dropping out of college until my health problems, preexisting and otherwise, are under a better measure of control.  It has become almost as difficult as working a job, and I'm only doing two or three classes per semester, because going full time would just be incredibly dumb on my part.  I have to say, though, that due to having such health issues interfering with my education and possible future career goals are becoming valid reasons to say, “Enough is enough!  I'm tired of trying, and eventually getting sucker punched by my life and setting me back as a result.

With all of this talk of cutting Medicare and Medicaid, talk about abolishing the Department of Education, and other insane ideas, I don't know whether to continue my higher education goals, or discontinue them because where would I be able to get funding for it?  Someone might say, “If you had a job, you could pay for it.”  No, I would be incapable of paying for it unless I give over every paycheck without regards to my health and medical needs, my food, my supplies, and more importantly, how would I be able to pay for my doctor visits and treatments?  And who is to say that being employed now would not be as difficult as what it was like during 2000 to 2008?  

Sometimes, I get the feeling that many Americans, and even some of our elected representatives in the House of Representatives and the Senate, the President and Vice President, and any other elected official at the federal, state, or even local level truly do not understand the difficulties in life that those of us not having been born into riches have to deal with, what hardships are in our way, the obstacles in our collective path to get where we are now in our lives.  

Those of us not lucky in our lives to be born into vast wealth are unable to attain wealth when born with preexisting conditions and disabilities.  In fact, being born with those problems right out of the gate only makes life that much more difficult to achieve any measure of success.

I want to succeed in life, but my health issues stemming from birth are interfering with that quest.  My dream, aside from having a normal vision left eye, is to be one of the best computer technicians out there in the field, a network security expert, and on the side being a hobbyist musician.  I want to play the drums like my musical role model, Phil Collins, and I have taken lessons on the piano to learn to play some of my favorite songs of Phil Collins.  I have also a guitar that I would someday like to learn to play, but unlike my abusive late father, I'm not what one might consider a “self taught” individual when it comes to instruments.  I need music lessons with instructors, but that costs money, and if I cannot have the kind of career I dream of having due to my medical preexisting conditions and disabilities, I won't have my side hobby become a reality.  And in turn, all of my hopes and dreams will be lost.

I'm tired of being a reclusive introvert.  I don't like my picture being taken, I don't like being around a room full of people I don't know (that's part of the PTSD that my therapist believes I have), and I do not enjoy having a cramped space to live in by being confined to an apartment.  Part of that dream of being in information technology and network/cyber security is to have a modest size house.  Nothing big and fancy, but enough room to be able to do my work in, and also partake in my musical hobbies and ambitions.  

Though I can't do it if I can't pay for things like my doctor bills, my treatments and exams, tests, and of course my medications.  I can't do those things if I'm not able to afford a house, or have the kind of career my talents are suited for.

Even social programs designed to get people like myself into therapeutic treatments to relieve anxiety are often out of reach when I am constantly playing catch up with my aforementioned expenses both personal and for my medical treatments with my numerous doctors working with me.

I would love to be able to pay for a physical trainer to help coach me on how best to approach exercise to alleviate some of the chronic pain I experience regularly, but again, paying for doctor bills must come first.  And by the time I'm done paying even partial payments, I have often little left over for food, supplies, medications, and the occasional entertainment indulgence.  Because being stuck inside is terrible on its own, but having entertainment to help cope with my chronic pain, my disabilities, and even my preexisting conditions is better than being stir crazy and unable to express my emotions as I deal with all of what I have mentioned.

I hope this helps people like you to understand that not everyone can hold a job, especially when their disabilities and preexisting conditions are not “fake”, and interfere with being able to work and hold a job at all.

Sincerely,

~Jeffrey R. Kuntzelman 2017 “Your bark is only as good as your bite.  BITE HARD!” ~JRK 2004

Tuesday, June 13, 2017

Who is your personal favorite fictional hero?

Everyone in their lives has a hero from either fiction or reality that gives them somebody to look up to, someone to relate to, and someone that gives them hope when confronting personal fears, or perhaps an uncertain future.  It's human nature to want to have a role model, even if they are a fictional one.  That's just how it is.  Don't get me wrong, though.  Plenty of people will often use real world role models as well, from their favorite athlete or a community activist to someone in an elected office.  Many people decide to choose a religious iconic figure like Ghandi, the Dalai Lama, Mother Theresa, the Pope, or go straight to placing God, Jesus, Allah, Mohammed, or "King David" of the Hebrew Jewish faith as their chosen role model or hero.

No one is ever right or wrong to believe in their chosen role model or hero.  Though in our real world, some of these icons of hope, these individuals who we've placed in our hearts and our minds, can often be corrupted by circumstances either within or beyond their control.  We often place them on a high up pedestal and believe that they are without flaws or have any sort of vulnerability.
Because we are all flawed human beings to some degree (nobody is perfect), there are some of us who look to fictional characters for inspiration, for guidance, and even to admire.  Why is this important?  We want our role models, our heroes, to be good people doing the right things for the right reasons, and for a kind of moral support that we sometimes do not get in real life.  We want them to be the kind of people we could see ourselves being, or having a positive interaction with.  The kind of people we can have a conversation with, and even if we're in disagreement, we will walk away with a viewpoint seen through their eyes, heard through their ears, and spoken by their mouths.

Some groups of people might say that certain family members should be our first role models and heroes, especially if they serve their country by either public or military service, and that by not looking to your family members as your role models, you are going to fail in life.  Like as though if your role models or heroes aren't based in real life, you have no real idea of what it means to be brave or courageous.  I find the opposite to be true.  We have men and women regardless of whether they're a public servant in an elected office, a law enforcement role, or in the armed forces who have dishonored their country, and in turn their families, from their thoughtless and dishonorable actions.  Police officers being caught and busted for breaking the very laws they're entrusted to be enforcing.  Some teachers and instructors have been caught being inappropriate with children, teens, or have other flaws that make them seem less than honorable in their position of authority.  Our men and women of the military having their way with foreign nationals on their own soil by exploitation of any sort.  All the while, we like to think, "Oh, that is not all true.  I'm sure that there is something to the story we're not told."  Like what?  Do their victims really deserve being victimized?  I don't think anyone deserves to be a victim.  No one likes to be the victim of abuse of any sort, regardless of the intentions of the person who does it.  It's wrong, and those kinds of individuals are the people we should avoid making into a "hero" or "role model".  Don't misunderstand me as there are plenty of men and women in law enforcement or the military, or even public office, who are in it with the best interest of the public at heart.

Though it's hard to find a real world hero or role model when every few weeks, there is a news cast about a police officer, a person serving in the military, or some public elected official getting caught red handed doing something incredibly stupid, and athletes aren't much better.  The high profile cases are when someone is shot, or their wives or girlfriends are abused in some way, some often being assaulted for some stupid bullshit because an athlete has been drinking or was doing some illegal drugs, mostly unverified until a trial has been convened, and even then, many of these athletes, politicians, police officers, etc get away with their inappropriate and obviously illegal activities, because of their notoriety, their influence, and their fame and fortune, or have some weight with a powerful lawyer to get their case dismissed often on a technicality or some other minor issue, which fails our justice system entirely.  These people have no honor, and should not be looked up to as role models.  If anything, they should be viewed as what NOT to be doing in life.  So, what makes somebody either in reality or in fiction worthy of role model or hero status?  The answer is sometimes simpler in thought than what many think to be complex.

Let's look at what my role models and heroes look like.  I would like to begin by sharing with everybody my real world role model, Phil Collins.  Granted, his relationships over the past 40 or so years have been full of turmoil and disruption.  But that never seemed to bother me.  It was his music that I fell in love with.  Some of which have inspired me to learn to play music instruments like the piano (on my 61-key keyboard), and to learn to play the drums.  Interestingly, I am a right handed individual, so naturally, the high hat would sit to my left and I would play it with my right hand, but my instructor felt I could do the opposite and play like Phil Collins, a left handed drummer.

But that's not the end all of why he's my music role model.  The songs he has both written and produced, and played on his own equipment, were helpful for me in getting through some of the most difficult times in my life during junior high / middle school (7th and 8th grades) and upper grade high school (grades 9 through 12, freshmen to senior respectively).  I was harassed a lot because I am blind in one eye.  Before having my real blind eye removed last year as the result of years of pain, the blind eye had a look where it would, by itself, move up and to the left making it appear to have its own mind of what it wanted to do.  This became part of the bullies' arsenal giving me a hard time in school to the point where I just didn't care to be in school or do the work, much less participate in class projects.  I was often paired with my bullies in a teacher's effort, a vain attempt, to instigate a peace between myself and the bullies.  I'll give you a hint.  It never worked! And no matter what I did, say, or knew (and sometimes it was more about what I didn't do, didn't say, or didn't know). that was what became the bullies' target of harassment. The music that was from Phil Collins became my life's soundtrack.  "Against All Odds" reminds me of a friend who gave me emotional support and advice, "In The Air Tonight" gave me an outlet when I was angry, upset, frustrated, or just plain pissed off about being harassed endlessly from day one being in Kindergarten to my last day of school at my high school graduation from Bonanza High School on June 11th, 1998 at the Thomas & Mack Center in Las Vegas, NV.  The only time I got a reprieve was when my parents, seeing that I was having suffered verbal and emotional abuse at school, let me stay home to recover from time to time.  And prior to 1993, when I rediscovered the music of Phil Collins, I would often write in my journals, or play video games (and I still do both), and talk to my parents about my problems at school, or at least try to.  I felt often like I was being ignored because my parents, and my older brother, had their own problems to deal with, and I felt like mine were a non-issue to them.

The music of Phil Collins helped me to cope with it all.  From songs such as "I don't care anymore" to "In the Air Tonight", and finally "Take me home", especially the live versions of the aforementioned songs.  I ended up taking a few lessons on playing the drums because Phil Collins was a drummer.  And secretly, that's what I wanted.  Since I'm an extremely introverted person, I was always daydreaming about playing for hundreds or even thousands of people, and playing beautiful music, plus playing my own cover versions of my favorite songs from Phil Collins.
But then I had, and still have, a lot of medical problems that got in the way constantly of making those dreams come true.  In the end, I kind of gave up in favor of taking care of my medical issues and health needs.

At one point, I did seriously consider suicide at age 11 years old.  It was because of my meeting a certain young girl the following year that I put aside that thought temporarily.  Though, it still plagued my mind often when I was facing harassment at school, abuse at home, and having many medical problems prompting my visits to various and numerous doctors, mostly about my blind eye.  It became overwhelming at times, and I think in a way, I had to grow up exponentially because of that.  And that's where music became my escape hatch.  After 1993, and rediscovering the music of Phil Collins, my life became somewhat tolerable.  I still faced much harassment at school, having teachers and "counselors" not really getting it with why I wasn't doing my school work, and my parents going through a bitter divorce, even though the marriage between them had been chaotic, abusive, and sometimes violent.  It was only until I got into high school (9th through 12th grade) that the abuse and violent interaction between the four of us (myself, my older brother, my mother, and my late father) seemed to decrease significantly.  I think much of it was due to my brother and I reaching ages where we knew we could call police if it became a matter of life and death.

Nothing was ever really done about the bullies in school, and the fact that it still goes on even in today's schools across the United States remains largely unresolved.  Some parents think that being bullied, and being a bully, are both a "rite of passage", and that it builds character and makes the victims learn to fight back.  I have severe issues with those ideas because if victims fight back like I did a few times, they are often punished more than the bullies themselves.  Often, they get a pat on the back from their teachers for being assholes, and I've been told that parents of said bullies were often worse than their children assholes.  I don't think there is anything honorable about being an asshole, or projecting the idea (as a parent) that being an asshole is proper etiquette.  If a parent cannot teach proper manners, and more proper attitudes about encountering children with disabilities, or just being different, perhaps that parent should have to take mandatory counseling courses on why being an unhealthy role model is hurting both their child and, concurrently, hurts other children as a side effect.  I happen to also believe in giving parents fines imposed on the school when their child becomes an unruly student with behavioral issues that border on sociopathic or even psychopathic.  

Before I rediscovered the music of Phil Collins, I was very much into Star Trek, and more notably its spinoff series "Star Trek: The Next Generation".  I became fascinated with the series, its stories of conflict resolution, and the idea that former enemies could become valued members of a United Federation of Planets in Starfleet.  I became interested in three characters from that series.  The first one, Captain Jean-Luc Picard of the U.S.S. Enterprise NCC-1701-D, was considered my role model captain.  Someone who made decisions carefully, and often with advice and counsel from his senior officers as well as other junior officers onboard the ship.

(From the season 2 episode "Peak Performance", Star Trek: The Next Generation when Picard (Patrick Stewart) addresses his temporary first officer Lt. Cmdr. Data (Brent Spiner) about how you can make no mistakes and still lose.  A very valuable Star Trek "Picardism")

He would evaluate a situation, asking for his officers to give their input on the subject, and then act accordingly, and often made his own decisions based on that input from his command staff.  But the series wasn't always about encountering new life forms and new civilizations.  It was about peaceful coexistence with all species of all kinds, or at least attempting to do so.  The other quality I found interesting was that in the show's futuristic 24th century, the idea of profit and wealth being the driving force behind every action of the human race was an antiquated idea.  It became an extinct way of life where no one man or woman in humanity was driven by profit, and worked only for the betterment of all humanity, of all member worlds of the United Federation of Planets (loosely based on our reality's United Nations of the stars).  Money was simply nonexistent to mankind.  Except where other alien races still used a currency known as gold pressed platinum, i.e. the Ferengi Alliance using what was called "Gold pressed latinum" as their currency.  I felt that the Ferengi were the extremist capitalist human equivalent of the 24th century.

And his speeches... Oh my goodness, his speeches were well written by the show writers, but he delivered them in such a way that they had a very profound impact on fans who were paying attention.  I believe there is a difference of types of fans.  There are the group of fans that are into the "pew pew pew pew pew pew" action of Star Trek, and then there are groups of fans like myself who look at all sides of the show.  The philosophy, the ethics and morals, the interpersonal relationships between the characters, the purpose of the "United Federation of Planets", and to a lesser extent its exploration fleet called "Starfleet".  The fans like myself who understand that Starfleet's primary mission, its standing orders were exploration.  Only when it became necessary, and only as a last resort, would a ship defend itself in battle.  There was almost no "first strike" kind of offensive action taken by any Star Trek captain.  Well, maybe except for Kirk.  But that's another story for another time.  The picture below is from the episode "The Drumhead", season 4, "Star Trek: The Next Generation":


Another character I grew very fond of was that of Lieutenant Commander Data played by Brent Spiner, an android created by another fictional character, Dr. Noonien Soong.  Data had a childlike wonder about humanity, and what it meant to be human.  He often wished to become human, albeit retaining his android capabilities.  What made me think of an android being a role model was that he had an unquestioned loyalty to the ship, to the captain, and above all maintaining good over evil especially whenever his brother Lore was in any given episode.  In every possible sense, he knew right from wrong, and when he saw something that was wrong, he didn't hesitate to call on it and worked to show his colleagues why that something was done wrong.  Another trait I found admirable was his considerable and extensive vocabulary.  I have now started as recently as just a few years ago a list of words that I come across from either Star Trek (any series TOS, TNG, DS9, VOY, ENT) or from another show that I am fond of.  Data's vocabulary was, at times, elusive to decipher without looking up the word in a dictionary.  Since I began using closed captions or subtitled text on DVDs, Bluray discs, Netflix, or any other media like broadcast TV, when I see a word that I don't quite know the meaning of, I look up the word, and then I add it to my list that I call "Interesting words and phrases".  As an amateur writer, I use this list as a guide for when I need a certain word, but can't quite pin down what it is I want to say in a story, an article, an essay, or a research paper for a college course project.

(Lieutenant Commander Data (Brent Spiner) as the U.S.S. Enterprise NCC-1701-D was about to crash on Veridian III in "The Next Generation" cast movie "Star Trek: Generations")

Also, Data's speech (although only a few minor discrepancies during the series run) was always so proper, never using contraction words like "can't", "won't", "don't", and others.  It was always " I cannot", or "I will not", or "I do not".  His speech was fascinating, and I often tried to adopt his particular phrasing, with some minor success.  I still use contraction words like most people.
Still, though, it was his ability to know right from wrong, and always brought something important to the captain to consider, despite knowing that the captain would have the ultimate decision to make.

(Courtesy: "Star Trek: First Contact" when Data (Brent Spiner) is captured by the Borg, and subsequently has a dialogue with the Borg Queen played by Alice Krige)

Then, for me, there was Lieutenant J.G. / Lieutenant / Lieutenant Commander Geordi La Forge played by LeVar Burton.  Born on Earth in Africa (I forget where exactly) with blindness in both eyes.  This character is what piqued my interest because I was also born with a vision impairment.  He was born completely blind, while I was born blind in only one of my eyes due to a birth defect, but he still was my inspiration.  He went from being a junior officer helmsman of the Enterprise NCC-1701-D, to being the ship's Chief Engineer.



The mere fact that he was a blind helmsman of the Enterprise D was, for me, amazing.  Although he did use a prosthetic device to be able to "see", it was different for him to be able to see with his VISOR or Visual Instrument and Sensory Organ Replacement.  With the prosthetic VISOR device, he could see things that most of us could not see.  Everything from infrared to ultraviolet was within his visual spectrum.

So, for me being a fellow blind man, his character was my inspiration.  Having gone from being the Enterprise D's helmsman to Chief Engineer meant to me that anything was possible even with a vision impairment.  The scene that touched my heart the most was when Geordi was offered by Dr. Pulaski in season (2) two to undergo a procedure that could have given him real eyesight, but it was a risky operation.  He declines, but later in at least one of the movies with the TNG crew, La Forge opts to have ocular implants, bionic eyes where he can see like the rest of us, but still retain a sort of VISOR-like visual spectrum.  That too was a great inspiration for someone like me who longed to have sight out of my blind eye like everyone else that I knew.  Unfortunately, that dream is no longer possible, but I still dream of having something like what Geordi had for vision.

(LeVar Burton as "Lieutenant Commander Geordi La Forge", Enterprise D / E Chief Engineer 3rd season and on through the TNG crew films)


In the movie, "Star Trek: Insurrection", affected by the metaphasic radiation in the Briar Patch (sector 441) and on the Ba'ku world, he begins to have normal vision, like the rest of his colleagues and shipmates.  It was a touching moment in the movie when confronted by his commanding officer, Captain Picard, that he reveals that when Dr. Crusher removes the implants, she didn't find anything wrong, but found something right as the cells in the eyes have regenerated.  In some ways, I felt envious of his character regaining something I have never had since birth in my left eye. 
In fact, I was told at a young age that my left eye, being blind with and without an actual eyeball, could never be replaced with an implant to be able to see out of both of my eyes.  This was a disheartening, soul crushing, dream smashing revelation that I could not experience the kind of miracles that my fictional hero got to have.  I remain hopeful that one day, I could be fitted for an implant where I can see out of my left eye, but I know that I should be thankful for the sight I do have in my right eye.

(LeVar Burton as "Lieutenant Commander Geordi La Forge", Chief Engineer U.S.S. Enterprise NCC-1701-E, "Star Trek: Insurrection" watching a sunrise for the first time with no VISOR or bionic implants)

At least, though, I know that medical science is working on such devices for people with vision impairments like me, or have permanent loss of vision in one or both or someone's eyes.  Sometimes, I think I was born in the wrong time period.  Or maybe I was born in the right time period to show people that vision impairment, or even blindness in one or both eyes aren't something that someone should make fun of.  It may seem funny to someone watching a vision impaired child or a man or woman walking into a wall that anyone else would be able to see clearly.

That's also what I loved about "Star Trek", they didn't resort to making fun of their peers.  Onboard the Enterprise, no one makes fun of anyone, and Geordi La Forge having blindness was never joked about by any of his colleagues or shipmates.  There was an implied sense of being a responsible adult and not giving someone a ration of shit for being different.

That is a kind of future I want to live in, where even if you're permanently blind in either one or more eyes, nobody "judges" you, and they don't dare to do that.  Just because someone is different does not mean you have a license to be an asshole to them, especially when either a blind helmsman or a blind chief engineer ends up being the one who saves everybody's ass, including someone's judgmental ass!
Next time someone makes fun of another person, whether child or adult, boy or girl, man or woman, don't think the problem will resolve itself.  Step up and defend that person with a disability.  The fact that the show never had one character being harassed about their abilities or lack thereof shows we have the ability to be a more civilized race.

Those are my fictional heroes!  They are the ones that shaped my life into the sympathetic person I am today.  I can be an asshole if I need to, but not the kind of asshole who judges people.  Unless that person is willfully ignorant, stubborn, and unwilling to see another point of view because their minds are made up, and short of an act of God will they be ever convinced that another possibility exists.

There are, though, other types of role models.  For example, one of my favorite musicians happens to be as I said earlier, Phil Collins!  A talented musician who writes his own music, plays his own music instruments including the drums (as most of us know), and has given us such classics as "One More Night", "Sussudio", "Do You Remember?", "Another Day In Paradise", and my personal favorite "Take Me Home".

(Phil Collins' autobiography detailing his life, how he got started with Genesis, and how his solo career alongside working with the band Genesis was not compatible with his marriages / divorces)

Aside from his personal life, which I have very little knowledge of, I have been an avid fan of his since 1993 when I rediscovered his music through his live album "Serious Hits... Live!" Unbeknownst to me, at the time, I had no idea that "Live" meant he was performing his hits live with an audience.  I was that naive at age 13 going on 14.  No one had explained to me that a live album meant that a musician or band was playing their beloved hits live.  However, it did do something unexpected.  I became a fan of live performances, and I began to understand that if a musician or music artist cannot perform live their music, their music sales will suffer as a result.  

When I was rediscovering Phil Collins and his music, it started with a hunt for the song "Against All Odds (Take a look at me Now)".  When I played the album all the way through, I discovered that many of his hits I've heard before, and were wonderful when performed live.  I started to rediscover the music of his band, Genesis, and rediscovered some of their greatest hits such as "Invisible Touch", "Land of Confusion", "Abacab", and now my personal favorite, a two part song called "Home By The Sea".  The second part of the song, "Second Home By the Sea" has been one of the more elusive drum patterns to play.  That hasn't stopped me from trying for nearly 20 years.

Because I feel Phil Collins was, and still is, a well rounded person having had small acting parts, has done music for Disney in the movies "Tarzan" and "Brother Bear", and has performed all over the world, I consider him to be one of my role models in music.  Especially the fact that he plays his own instruments, writes his own music, and collaborates with various other musicians including Elton John, Eric Clapton, and many others.  He even performed in Live Aid in 1985, where he performed in London, and then on the same day took a concorde flight to NYC to perform Live Aid for there as well.  How he did it is beyond me, but that takes a lot of strength to do two shows in one day.  

One of the best live performances of his has been when he performs drum duets with longtime partner drummer Chester Thompson.  

(From left to right: Cheseter Thompson, Phil Collins)

On a side note, Chester Thompson is what drummers would call a "right hand style drummer" where the hi-hat sits to his left, but played with the right hand.  Phil Collins is the opposite, being a "left hand style drummer" where the hi-hat sits on his right, but played with his left hand.

As a result of both the music of Genesis (w/ Phil Collins as the lead vocal), and Phil Collins himself, I have discovered a desire to play music myself, albeit trying to imitate my role model Phil Collins.  I have set up a drum set to be left hand style like Phil Collins, and I've taken lessons on the piano to play some of his best piano based hits like "Against All Odds" and "Another Day In Paradise".  I hope someday to be able to play "In The Air Tonight" on the drums, just like Phil Collins, and be able to belt out the lyrics during drums play.  That's my ultimate dream (other than having sight out of my blind eye).

I'm still learning, even at 38 years old (almost) at the time I write this blog entry, but I am confident that with time, effort, and the proper venue to play at home and not disturb neighbors, I hope one day to be able ot mimic Phil Collins, but also be like my other role models in order to be a more well rounded individual.

So, who are your role models?  Who do you idolize in either music, philosophy, or any other subject?  Remember, there are no right or wrong answers to this.  Have fun thinking about who you want to be like.  


Tuesday, February 21, 2017

Immigration debate rages on

I was sent this following link as a comment to a Pin on one of my Pinterest boards in response to the pin itself about illegal immigrants allegedly getting free shit in welfare benefits once they've entered the country illegally, and I'll post the pin image as well:



The first paragraph is horrible to read, suggesting that we put a "minefield" along our southern border with Mexico.  That has to be the most horrific idea I've ever come across.  The fact that some United States citizens are so callous to human life that even one of them thinks this is a good idea is a sick and twisted individual.  I mean, I know I have my moments of being sick and twisted, but definitely NOT this deep.  I'm more of a shallow-end sick and twisted.  

What makes this whole idea in the first paragraph horrible is when one thinks of children of those illegal immigrants.  Remember, when we're kids, we don't get to have a choice when mom or dad says "We're going and that's final".  Especially if you're under 10, you don't have many options to choose from.  You can choose:

a) quick, but painful death
b) slow, and very painful death
c) cold, slow, and painful death
d) lonely, cold, slow, and painful death...

You get the idea.  And as a child under 12, the idea of a death without your family near you is unconscionable.

Oh, and here's the Pin image that earned me the comment reply of the link above:


 So, I'm not sure what I'm supposed to say.  "Yeah, that's a great idea.  Let's kill 'em.  Kill 'em all!"  That just sounds psychotic.  Just even thinking it causes me great agony, because the United States is supposed to be more compassionate than this, but yet, this is what someone thought up.  Do we have a big illegal immigration problem?  Sure.  Yes, we do, indeed.  But should it warrant "killing them all" as it were?  NO!  We're better than that.  We can find a better way to make legal immigration more enticing.  

First, as an immigrant, if you want to become a United States citizen, there are steps laid out on the U.S. Citizenship and Immigration Services (USCIS) website on how to become a citizen if you were born outside the United States.  A person can apply for citizenship through their U.S.-born parent, or apply for naturalization.  Some of the requirements in their tests include knowing good English, and having a solid knowledge about our civics (U.S. history and government).  But there's more....

You have to be a legal permanent resident for five (5) years at least, and to apply for permanent resident status, you can apply through a family member, a job, refugee or asylum status, etc.  And even then, there are numerous steps to becoming a permanent resident with limitations on when and where you can travel outside the United States.  This is all on the website for "USCIS" plus a lot of great information on citizenship requirements, especially if an immigrant is not already a U.S.-born immigrant-descendant.  

So, you figure through all of the processes and procedures, plus verification of paperwork and documentation, it can take years to become a legal resident, much less a United States citizen.  And with the conditions of the countries that many immigrants come from are in severe shape, worse than we THINK it is here in the United States.  We have it very good here.  We have some of the best in medicine, technology, and of course, our military strength.  Not just that, but we have a smart military.  Some soldiers have done courageous acts of defending not just their country, but their fellow soldier, sailor, airman, Marine, etc.  What might take another country a hundred men to do, our United States military can get done with maybe a fraction of that number.  Like 10 or 20 men/women.

Note: There is some misunderstanding about gaining citizenship through military service.  We have some immigrants who chose military service in exchange for citizenship, and although it is listed as one of the ways to gain their citizen status on the USCIS website, and upon returning to their home in the United States, we have those same immigrants being deported for any reason while having committed no crime.  That is ALL WRONG!  If an immigrant chooses military service to gain citizenship, then I can think of no better way to earn it than by serving.  

But, I do know this much.  My grandfather, and my two uncles (possibly more) did not join the military just so that some brat citizens who want to kill immigrants, especially illegal immigrants, can do so without thought of repercussions like being arrested or being charged with a crime.  Some people think that should even be a legalized thing to do.  Kill illegal immigrants on the spot. and ask questions later if at all.  I see that we have a long way to go when it comes to compassion in this country, and with the election of Donald Trump as president, I fear we're going to be headed down some very dark paths before we come back from the abyss.  

I agree that illegal immigration is a problem, but the solution should never be to include killing people who have likely done nothing wrong except try to immigrate to the United States illegally.  If that is their only crime, and we resort to killing them, along with their kids, we have become an ugly shell of our former self as a country.  There are many other ways to solve the problem without this kind of reckless thought process.

One of the main arguments against illegal immigrants, which I get, is about them not paying taxes.  However, we have thousands of Americans who would gladly get out of paying taxes if they thought they could get away with it cleanly.  Sort of like saying "I want legal immigrants who pay taxes, but I don't want to pay more taxes myself and have people living off my dime."  That's a discussion for another time, but if the argument is based on paying taxes, should we not make sure that every American pays their fair share of taxes, including the number ONE man in the highest elected office in the country, the President?  Let's see his taxes for the last 15 years, and if I like what I see, I'll support more reasonable measures to curtail illegal immigration.  However, if he continues to dodge the press in releasing his tax return details for the last decade and a half, then I don't want to hear him or those who both support him and are against illegal immigrants say that it's about paying taxes, when you know damn well that they both aren't paying their fair share in taxes either.