Caption: Fill in the blank: "If I won the lottery, one of the first things I would do is ______!"
Admiral JRK's personal logs, musings, etc. Just random thoughts from time to time. Sometimes it is about my personal medical issues that are annoying me, & sometimes it is a political rant, but oftentimes I just need to vent. Whether anyone reads it is at their own risk.
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Sunday, June 10, 2018
What would you do if you won some money?
Caption: Fill in the blank: "If I won the lottery, one of the first things I would do is ______!"
Friday, June 01, 2018
The dreaded "C Word"!
We all know that some words you just don't use. You don't say them, regardless of how angry you are, or how much someone deserves it.
I'm not going to spell out those words, because we all know what words they are, and that we know for certain never to use them in public, or at least no where outside our homes. Needless to say, I can tolerate a lot of things. I can handle cursing, swearing, cussing, profanities, obscenities, etc. I can even handle off-color jokes regardless of who say it. Hell, I keep a copy of Chris Rock's "Rollin' With The New", and it's damned funny!
I can handle a lot of shit, a lot of vulgarity, and a lot of fucked up shit. I've watched all things Seth MacFarlane & his sis Rachael MacFarlane. Everything from Family Guy, to American Dad!, the Cleveland Show, A Million Ways To Die In The West, Ted & Ted 2, the Family Guy Star Wars spoofs, his dvd "Cavalcade of Cartoon Comedy", plus his Family Guy album laced with A LOT of really raunchy stuff.
That all being said, there are words that just shouldn't be allowed to be uttered in civilized society. I'm all for free speech, but maybe there ought to be some limitations. Hate speech that provokes or incites violence including violent crime should be without question a "No-no!"
The N word is a HUGE "No-no" for folks of any kind. It shouldn't be used by caucasians, & if African Americans want white folks to stop using it, maybe we should start by setting the example by, oh I don't know, NOT USING IT IN ANY CAPACITY!
The same goes for the dreaded "C word". Just so we're clear, the word is one that describes a woman's body part in a vulgar way, almost making it sound like it has filthy connotations. It's a word I choose never to use, not even when in the heat of anger, or even as a joke. It's just so not appropriate for anyone, anywhere to use. And even worse is when women use it on other women.
Because I have a high respect for women in my life, I won't ever use the C word ever no matter how angry I am with a woman, or even if she deserves it! I have a very well mannered level of respect for women, epecially those in my life such as my mother, my late cousin & her surviving two beautiful daughters, my other female cousins, female friends, teachers & instructors including one in particular (Mrs. Liebengood) from my 6th Grade school year @ College Park Elementary School in Costa Mesa, California (under the Newport-Mesa Unifed School District), and during that same time period another young Hispanic lady who helped me cope with the bullying & my other life problems at the time. Without any of those women in my life, I may not be here today.
But that's not the only reason I hate, despise, abhor, detest, highly dislike, have a high distaste for, and above all think is inappropriate on all levels to use the C word! I have a personal experience with the word, and how I came to realize what it meant, and also why since a certain incident that I'll never ever forget, I'll never use it, and I hate it when people use the word either as an insult or as a joke, or both.
First, some background. If you haven't realized it yet, my full name is Jeffrey R. Kuntzelman. Before we go any further, I want to empathize the fact that the C word being inappropriate has a lot to do with my given family name. To set the tone for the following recollection of true events told from my perspective, we need to take a trip to Colorado Springs, Colorado in 1993.
I don't remember exactly when this incident happened, but it was right before my immediate family members & myself (my mother, my father, & my older brother) were going to move out of Colorado. In my mind, we were heading back to Southern California, and then I had it in my mind to reconnect with that young Hispanic lady friend, because I really needed a good friend at that time, and writing to her just wasn't doing it for me.
But that's a story for another time. The incident about my learning the C word, and how it related to my family surname is what's important here. Off and on, my mom & dad would help out my dad's family, i.e. his brothers (my uncles), his dad (my grandfather), etc. The fact that much of the people we lived with & lived near all had (to some extent) a mutual last name, Kuntzelman. Here's where things get ugly.
I don't know the details, who did what, or who slept with who. At the time, me being 14yrs old, I couldn't give a fuck less about any of that. I was aware of some animosity between two of my dad's brothers involving ONE aunt, who at the time still shared our family name by marriage.
One afternoon, after getting home from my day at Sabin Junior High School (now "Sabin Middle School"), I was about to be scolded for a bad report card (I had been failing some of my classes, but I later passed barely, but again it's a tale for another time), when my dad wanted to check the message machine. Remember, kids! We didn't always have built-in voicemail for our home telephone service from our telephone service providers. We had to use automatic recording devices with audio cassette tapes. It was a real struggle in those days, especially if someone inadvertently erased messages.
Bottom line, one of my dad's side uncles (We'll call him "Robert") decided in his infinite stupid wisdom to leave one of the nastiest voice messages I'd ever hear in my life. Something about the ONE aunt who seemed to be sleeping with both of my (late) dad's brothers, between "Robert" & "Ron".
(Again, I refuse to say the C word, much less spell it out, but WILL blank out the necessary letters!)
"And you can tell that fucking c*** to fuck off! That fucking c*** is nothing but a fucking cheater, and that "Robert" guy is a c*** too for sleeping with that c***!"
Soon after, we left Colorado Springs, Colorado hoping to leave behind Robert & Ron along with that one aunt whom we'll call "Josie" to work their white trash shit out.
At the time, I had no idea what my vulgar uncle meant at the time calling both aunt Josie & the other uncle a c***. I thought he was just using part of our given family name as a shortened version. It wasn't until I got into Bonanza High School in Las Vegas, NV to realize what that uncle really meant. And immediately, I was disgusted, dismayed, and above all ashamed of my uncles using such filthy vulgar language.
From then on, and ever since, I have refused to use this word, the C word, ever. I don't care how mad I am, or how funny the joke would be with it, I won't ever use it. And the people who do use it in my presence is ear splittingly bad. Nails on a chalkboard would be better than listening to some asshat, assclown, or some dumbass use it as a joke punchline or as an insult.
I've even ended a long time friendship with a certain friend from high school since he couldn't stop using it even after I've repeatedly asked him to not use the C word to describe his ex-girlfriends, or his ex-wife. Or using it on any woman at all.
So, when Samantha Bee on Full Frontal w/ Samantha Bee used it, I was disgusted. Normally, she is fun, funny, entertaining, etc. But the moment she used that word, she lost some of my respect.
It's bad enough that I've had to fight with companies like AOL, Microsoft (Hotmail / Windows Live), and even Comcast/Xfinity who have at some point or another told me that my family name, my legal surname, is a dirty word because of the 1sf four letters "K-U-N-T". It was even worse for my female cousins who shared our family name. They've had to use their mother's maiden names to get by in school.
So, when someone says the "C word" is no big deal, it is for me. It should've been for certain family relatives back in 1993. It should ALWAYS be a big deal to NOT use that word in the presence of children of any age.
Thursday, July 20, 2017
A dream among many
So, tonight, since about midnight, I was playing a video game on my PS4 console system. I was enjoying myself for the most part, but I felt really... alone. Sure, I have a friend who plays the game as well, but I never like to bother him, because he's playing a different faction, for one. I figure he's doing his own thing, so why should I bother him for quests or missions for my own benefit? The answer is, I don't. And two, it's not at all that I am against sharing loot on enemies killed, but I have honestly no idea what might be within my level of interest or his.
Then I started to think, "You know what would make playing video games even better? It would be nice to work, and then earn my time playing the video games in question." You know? Doing a job, getting paid, and being able to pay bills, and then have some money left over to indulge in said games."
Maybe I need to stay in school, if nothing else to feel like I earned my time to play my video games. Mom says I should consider something with graphic art design with video games, but I'm not an artist. My art creations are awful, at best. Add to that, I've heard a lot of horror stories about game testers, designers, etc being crammed to finish a product by a deadline. The last thing I need is to be given a stressful work environment.
But then I thought, "What could I do?" I mean, I love music, but I'm not creative there, either. I want music to be a hobby, and not a job. And just like game design, there are deadlines that make the job stressful.
I think if I could spend my time writing, and getting paid for it, that might be a better use of my time. I love to write. As long as it's a topic I find interesting. Just don't ask me to present it. I feel like I don't have a knack for presentation, but I know that not many careers exist where writing doesn't have its own deadlines and stressors.
Maybe there are no careers fit me comfortably. Maybe that's the point. When we all get a job for the first time, it's always going out of our comfort zone.
I'm just so tired of feeling cooped up in this apartment, having only doctor appointment after doctor appointment routine, and the days where we have absolutely none of that going on, I tend to sleep all day long, because if I get up, my mother will undoubtedly want to go somewhere either for food, or to get "supplies" for the dog that apparently can't wait another day.
Then I started to think about things like my 7pc. drum set that I have on hold. I thought about once I have paid in full for it, where would I put it? Storage space would be at least $75-$100 a month. And as it is with two payday loans outstanding, plus trying to pay dear older brother for the truck issues, I feel like it would be a financial burden unless I had a house.
And that brought up thoughts about even having a house. My whole thought process when I started going to college was so that one day, I could get off of SSDI, make some decent amount of money for a nice and small house with enough rooms for a game room/entertainment room, a music room, and then my bedroom with a living and dining room area. Plus a two car garage.
That was my dream when I started, but having persistent migraine headaches, having persistent infections (specifically MRSA), and having outstanding debt just makes the dream of owning a house seem like a fairy tale more than a dream. And it's not a happy fairy tale ending, because it is certainly fictional.
Living with my mother has brought out the cynic in me. I've always tried staying hopeful, but lately, there are days when I stay in bed all day long, and my thoughts are "Why should I get out of bed? What is it that we're going to do that's anywhere near fun, except for mom to go shopping while I babysit her dog while in either a hot car, or a cold car depending on the weather. I've not only become a live-in aide to everything, but I've become dogsitter-in-chief because, *drum roll please*, she has no one else to do it.
Oh. Every once in a while, she (mom) can coax her part time bf to watch the dog, but that has consequences, especially for the dog. He gives her table scraps even though mom and I have strongly discouraged this behavior. We end up with the vet bill while he gets to go home and take care of his own drama.
Me? I have no one else other than Mom to hang out with, and that's the most fucking depressing thing to realize. No matter where I go, no matter what I do, there's mom. Even when I'm in class, she constantly texts me about weather updates, and keeps questioning if I should have scheduled ride.
And that in itself presents problems because she strongly encouraged me to get recertified BEFORE my time was up, and during the test she kept texting and calling me DURING RTD's tests. So, I was a little perturbed by it, and as a result my criteria for rides are now restricted from dusk to dawn.
Add to that, I'm almost always a passenger in my own vehicle that I own, and I almost never get to drive unless mom has a serious problem. And even then, she doesn't trust that I can effectively drive. And that was BEFORE I had my blind eye removed. Now I barely drive at all.
Which brings me back to days when I stay in bed, I think to myself "Why?" And "Where will I be traveling to as a passenger in my own fucking vehicle?" It's just fucking depressing.
Which leads me to thinking all of my dreams and hopes have been coming to a grinding halt because of A) medical problems that are persistent, B) an overbearing mother who can't for once let me be independent, and C) I feel as though my soul dies a little every day that I'm not in control of even my own fucking vehicle, or in charge of what's best for me.
This is why there are days when I just say to myself "FUCK IT! I'm just staying in bed unless I get to go somewhere on my own without mom, without the dog, without being told to do anything." And God forbid I go to a fast food place and the instant I come home to eat, it's "Why didn't you call me and ask what I wanted?" Of course, this would imply that on any given occasion that I'm out and about, I MUST consider what my mother might want, even though I know that later on she might regret her choices in food. So, I have to avoid bringing home any food at all, no evidence, no trace that I went and indulged for myself and myself only. Yes, that would mean I did something selfish. And maybe because I wanted to save money.
My point being that I'm never truly alone when I'm out and about driving to where I want to go, because mom is almost always a phone call or text away from saying she needs (wants) something.
Going back to school has been on mind because of the persistent health problems. I was told that instead of using up all of my deferments, I could opt for income-driven repayment plan, which would effectively make my payments $0/mo. But then what happens when I want to resume taking classes? Will I be able to? Or will I still have the mom problem? Where everything I do is completely a choice, which it is, but going to school is what I WANT and NEED if I want a good paying JOB in the future, so it's kind of a HAVE TO kind of thing that she doesn't understand. Some people go even if their completely sick, and persevere. A little snow sprinkle, and mom loses her shit over whether I should even go to class at all.
I'm just so sick of this shit, and each day I'm not fulfilling any realistic dreams, a little of me dies a little inside. And mom does not make it any better. Quite the opposite, she makes it worse.
Thursday, July 13, 2017
Some thoughts here and there on my mind
I hate to do it, but lying to mom about what my psychologist doctor said makes me feel a little relieved. Now, I just need to get a message to my therapist on the 25th about the lie, and why it's important that we maintain that lie. Well, to be fair, it was not a lie. More like an exaggeration of the truth. And the truth is, I don't need more sleep meds. What I need is less "Mom" interruptions at night, especially when I've earned my free time to do what I want, when I want to do it, and especially when the next day we have absolutely no appointments or errands to run. Why is it that I should have to lie/exaggerate to mom to be less of a pain in my ass? And why is it that I feel relieved when she accepts the lie?
As both the doctor and the therapist have both put it, mom brings an air of anxiety that I don't need. She'll bring up problems that her friends or family members have, as though I care about their troubles. I mean, it's not that I'm that kind of asshole. I just don't care for drama. It's just not me, but unfortunately she uses me the same way her friends and family have used her, like a punching bag.
We have tried the boundaries thing where I say "No more unnecessary gossip, unless there is an extreme 911 emergency, after 11pm." At that point, I cease to care at all about anyone else's troubles as though they were my own. And to be honest, even before that gossip curfew, whenever she brings up what her mom or sisters or brother say, or if it's from my own brother, or if it has to do with her BF's family drama issues, I tend to think to myself, "And why should I care? It's not even my problem. Not even remotely my problem. Or hers." It's as though she takes everyone's drama issues and soaks it all up like a sponge.
You want to know why none of her family members, my brother, or her boyfriend have ever called me or texted me their drama issues at any given point? It's because I have the chutzpah to say, in no uncertain terms, "It's not my problem. I can give suggestions to help you, but I can't be the one to hold your hand while you stumble upon every obstacle. I have my own problems to worry about, and that means there is no vacancy in my mind for your baggage."
Well, especially if it were my own brother. In fact, my therapist this last Monday 7/10/2017, she offered to mediate a sort of "peace treaty" between myself and my older brother so that if we (mom and I) did decide to move back to Las Vegas, we might be able to live with my older brother. I told the therapist if she can persuade my mother to agree to such a thing, I'm open to the idea, but I have little to no faith that mom would agree to such a negotiation with my older brother knowing our family history.
Sure enough, after her appointment with the same therapist I go to, it became clear to me that she told the therapist, and I'm only guessing here, that it wouldn't be possible. There exists too much animosity with my brother and I, and to some extent between mom and my older brother as well. We can only "tolerate" him, but his narcisstic personality is so staunchly part of his mannerisms that he would never agree to any kind of sincere apology or reconciliation. This is not me being pessimistic about our relationship as brothers, it's a matter of fact and of history.
Anyway, to go back to my original point. Mom tends to take on her friends and family drama as though she has to be the problem solver, the peacemaker, everything to them. Because not a single one of them would a) know how or where to start looking for their own solutions, and b) none of them would do the same for her if the roles were reversed. And the fact that her family members are all self-proclaimed "devout Christians" makes me annoyed. Annoyed that such "devout Christian" people would shrug her off, but the moment they need help, they turn to her and dump all their emotional baggage onto her. And then she turns and does it to me, and on more than one occasion, I have expressed my disinterest to be her "whipping boy" as it were to dump her emotional baggage brought on by people in her family and friends onto me.
Don't misunderstand me, though. When her best friend died last year, it's been hard on her. I get it. Grieving is a process that one does not just "get through" and move on quickly. It's taken me, personally, over a decade to start to be able to talk about my dad's death without bursting into tears.
So, I offered my support even though her best friend, my aunt (not related), was not my best friend. Her passing really didn't resonate with me as much as say a family member or relative. However, the moment mom comes to me and complains about her friends, her family, even her boyfriend, and to some extent her "emotional support" dog, it's like a switch inside my head goes on saying "These are not YOUR problems to fix!" And "They're not even my problems, either. Not even remotely!
The kicker? I talked to the psychologist doctor (who also holds an M.D.) about when mom frequently harasses me at night when I'm playing my video games, or watching TV/movies, sometimes until the morning of the next day, and if mom (or even the doctor should be concerned), the doctor responded with, "You're a grown man. You can do what you want, and she should not be bothering you about your choices that aren't harming anyone!"
I grinned from ear to ear on that one. I mean, when I let my sleep come naturally, I sleep better. Even if it means I am up until 3 or 4am the next day. When I have to force myself to sleep long before I'm ready because mom feels that if she goes to bed early, so should everyone else, it gets me anxious. I have a hard time letting myself relax, because of the anxiety of having to acquiesce to her wishes that I sleep on the same schedule as her.
This is why, on more than one occasion, we have both expressed to the therapist our desire to live separately. It wouldn't mean I would not help her if she called, but being apart might do us both a lot of good, and give both of us a chance to really grow and maybe not depend on each other so heavily. We're pretty much co-dependent right now, and that's... that's just unhealthy. Especially when mom likes to find things to complain about.
Unfortunately, being on a waiting list for section 8 housing is about the worst place to be. My original thought when I began going to school was to eventually go back to work, even if it's part time only, and to eventually get into a house where I can have my music instruments in a specific room to play on and practice. That was the dream.
The truth is, I'm starting to doubt my ability to go to either work or even to school if I'm still having a multitude of existing medical problems. I still get bad headaches, usually from an infection or from inflammation inside my left eye socket. I still have days where I feel incredibly sick, and I'm almost always exhausted, even on days when we have done nothing important. Like nothing at all important.
I'm going to talk with an academic advisor in about 2 weeks to talk about whether I can do another deferment, and what that might mean if I had to reapply to college or not, or if I should consider dropping out. I know there are consequences either way I go. If I continue to attend school, and have medical issues arise that interfere with my work (or mom interfering with my work, because she tends to ask about homework as though I'm in high school which makes me feel anxious), I may as well kiss that associate's degree goodbye. If I drop out, I'm still kissing that degree goodbye, but also I would be required to start paying back my student loans. Though, because I do not have any gainful employment income, my payments would be $0 per month until I did get a job, if any.
So, I got a lot of things on my mind, and also this latest thing with mom putting up her guard when I mentioned I found a guy who claims to be a personal trainer who found my note, it just feels like nothing is ever good enough for her. Like unless I'm as miserable as she feels, she won't be happy. She can't be happy for me that, by accident, I came across someone willing to help me achieve my goals with regards to exercise. Instead, like her sisters that she complains about, she's been full of piss and vinegar the past day or so. It's making me feel annoyed. Maybe even a little upset that nothing I do is ever good enough or safe enough for me in her eyes.
I guess I would just like it if, for once, she actually listens when I say to her that I'm not interested in the drama factory, I'm not interested in the same things she is, and that maybe I want to take a risk and maybe earn a new friend who happens to be supposedly capable of helping me get into a good routine of exercise.
Maybe I'm just asking for the unreasonable when it comes to mom.
*sigh* In the words of Bilbo Baggins (Ian Holm), "I need a holiday. A very long holiday. And I don't think I shall return. In fact, I mean not to!"
Thursday, June 22, 2017
An open letter for people who believe those with preexisting conditions and disabilities don't deserve healthcare!
To whom it may concern:
I have recently read an article this morning on June 22nd, 2017 about the Senate's latest version of the “American Health Care Act”, and from what I read, it disgusts me.
I don't know if you understand the true measure of living with a pre-existing condition, a disability of any kind, or have medical issues at all that are considered chronic, but as a recipient of both Medicare and Medicaid, reading that funding may be deeply cut in both programs in favor of “tax cuts” for wealthy Americans while forcing many low income or poor Americans to pay for their own health care when they can't afford to do so is appalling, and we have not even touched on the idea that many insurance companies, without the existing ACA (Affordable Care Act) aka “ObamaCare”, would deny coverage to individuals like myself who have multiple disabilities and preexisting conditions.
I'm going to be 38 years old this August, but I have been a disabled individual my whole life. I was born with congenital rubella syndrome as a result of my mother coming into contact with a child who had rubella while she was pregnant with me. As a result of that birth disease, I was born blind in one of my eyes, also lower back problems, and had problems in other areas I will not mention here. Needless to say, doctors at the time did not know how to treat children like myself born with Congenital Rubella Syndrome, and of course at the time I was born, the birth disease was almost unheard of, and was not very much at all common. So, finding doctors to treat me was difficult for my parents.
Getting through public school was equally difficult as I experienced major harassment from both students and faculty regularly. From Kindergarten all the way through to my high school graduation day. My therapist (a mental health professional) believes that as a result of being both harassed and bullied at school, and being in an abusive home while coping with doctor visits and hospital visits extremely frequently, I had developed symptoms of chronic lifelong depression, anxiety, and have expressed symptoms that could be diagnosed as PTSD, or Post Traumatic Stress Disorder. It's not just for military vets anymore.
And because my late father didn't believe in going to doctors or having health insurance, my mother, while being repeatedly physically and verbally abused by my late father, had to work upwards of two or even three jobs just so I could get treated for problems related to my vision impairment. Eventually, we (my family and I) got help from the states that we had lived in, primarily California, Colorado, and then Nevada where our family was given financial assistance to help pay for my doctor visits, my 25+ surgeries, mostly on my blind eye to salvage it, and of course counseling to help cope with all of my problems at school, which I can say with experience that it didn't help.
I'm still dealing with many of these issues as an adult. I still have that vision impairment, being blind in one eye. There is no treatment available to correct that, except for prosthetics. And if cuts are made to Medicare and Medicaid as a result of this new Senate repeal of the Affordable Care Act (aka "ObamaCare"), I may not ever get that prosthetic implant and cover. There are no charities to help pay for a prosthetic cover implant, and my mental health services would be severely impacted, which I feel are important in helping me cope with the reality that I will never have full sight out of my eyes. I'll never have my dream come true, and with the idea of funding being cut from Medicare and Medicaid will almost assuredly kill my lifelong dream of having at least my two eyes look normal.
I don't know what I would have done without having access to mental health services. But I'm thankful that, for the time being, I can go see a therapist without being heavily billed for it. And that brings up my next point.
I consider myself lucky to be a recipient of SSDI, Social Security Disability Income, but as you may or may not know, I get only a small cost of living monthly payment from SSDI, and in my case just a little over $1k, which covers my bills barely like my phone service in case I need to call a friend for help or call 911 in an emergency, and then there is my vehicle insurance to pay for plus gas and maintenance, as well as other food, supplies, and medicines. Yes, I can legally drive, which I am thankful for, but in the winter months this is a hazard for me. Because of it being hazardous, I opt for the Access a Ride bus service, which can take me to and from my doctor appointments, and to and from college. I'll get to my comment about college in a little while.
So out of that $1k, I pay my regular monthly bills, and then I pay maybe two or three of my doctors in partial payments, because paying their bills in full (sometimes in excess of over $100 or even $250) is not possible without sacrificing either my food, supplies, or my prescription medications (some of which are for chronic pain). And when I have to use the Access a Ride bus service regularly in the winter, on top of my vehicle insurance, I could easily spend another $50 to $100 on transportation. That may not sound like a lot, but it could mean sacrificing paying one doctor bill, or my going without some of my medications, etc.
I know, there are many Americans who feel that Social Security Disability Income recipients are “fakers”, people who abuse the system to get “free stuff”. Well, that may be true for some folks, but not myself. I tried working both a part time and full time job, and it only made matters worse for my disabilities and preexisting conditions. I once worked as an “usher” for two movie theaters, doing mostly cleaning, which didn't help my lower back problems. I also worked as a “Courtesy Clerk”, or more commonly known as a bagboy, which also didn't help my lower back problems, plus plantar fasciitis issues in my feet. Yes, a teen working in a part time job can have preexisting lower back problems stemming from birth, as I was told. Cracks in my lower back plus a slipping disc. And the pre-existing plantar fasciitis in both my feet also didn't help my lower back problems at both of those jobs.
So, I traded in working as an usher and a “bagboy” to work in a call center in a technical support capacity. I wanted to really try to work in mainstream working environments. This later turned out to be a terrible idea. I developed massive migraines, anxiety from the stressful work environments, and still having mental health issues stemming from my time in grade school, middle / junior high school, and then of course high school, and then having to cope with my newfound medical problems with painful migraines that just never seemed to go away.
Upon starting work in a call center capacity from 2001 to 2008, I paid the price of excessive chronic pain, and I lost not one, but two jobs as a result of frequent time off without having any “paid leave” or vacation time left to cover it. It wouldn't be until as recently as 2016 that I would find out that the excessive pain was the result of multiple eye surgeries causing excessive scar tissue, and I found out that my glaucoma implants installed onto my blind left eye by an ophthalmologist in Las Vegas, NV, were found to be too big for the eye, and because of that, my doctors believed (in their reports) that I had suffered chronic and acute hemorrhaging of the eye, which could explain the extreme chronic pain I felt for many years following my eye surgeries in Las Vegas, NV from 1998 to 1999ish.
To say I was extremely upset would be an understatement. And then the idea of trying to obtain a job again also made me very upset and angry, because as a result of being terminated from at least two employers, neither of whom will say in whole honesty why I was dismissed, I cannot get good references. It would be my word against two former employers who have made it clear that I was unable to work in their company, even though I have a valid reason now for why.
So, when I hear some folks say “If you'd just get a job, you could have health insurance and get stuff paid for.”, as though it's just that easy to get on the phone and try again. I have to consider what it would mean to be off SSDI, which for now barely gives me money for food, supplies, and payments to doctors and treatments for my aforementioned problems that are both preexisting conditions and disabilities, paying the bills that Medicare and Medicaid could not cover the cost of. I have to consider what my prospective employer might hear from a former employer, such as:
Prospective employer: “Yes, I would like to verify the employment dates of one Jeffrey Kuntzelman?”
Former employer 1: “Yes, he worked here from [start date] to [finish date], but we had to let him go due to attendance problems.”
Without asking why the attendance problems,
Prospective employer: “Is he rehireable at your company?”
Former employer 1: “No, he would be ineligible to be rehired for any reason.”
And again, they would not ask the why, but assume I was just a completely lazy, poor work ethic individual with no cause for attendance problems.
As I mentioned, I am going to college, but even that has its problems ranging from missing classes, to sometimes being unable to complete the work involved in assignments. I have even considered dropping out of college until my health problems, preexisting and otherwise, are under a better measure of control. It has become almost as difficult as working a job, and I'm only doing two or three classes per semester, because going full time would just be incredibly dumb on my part. I have to say, though, that due to having such health issues interfering with my education and possible future career goals are becoming valid reasons to say, “Enough is enough! I'm tired of trying, and eventually getting sucker punched by my life and setting me back as a result.
With all of this talk of cutting Medicare and Medicaid, talk about abolishing the Department of Education, and other insane ideas, I don't know whether to continue my higher education goals, or discontinue them because where would I be able to get funding for it? Someone might say, “If you had a job, you could pay for it.” No, I would be incapable of paying for it unless I give over every paycheck without regards to my health and medical needs, my food, my supplies, and more importantly, how would I be able to pay for my doctor visits and treatments? And who is to say that being employed now would not be as difficult as what it was like during 2000 to 2008?
Sometimes, I get the feeling that many Americans, and even some of our elected representatives in the House of Representatives and the Senate, the President and Vice President, and any other elected official at the federal, state, or even local level truly do not understand the difficulties in life that those of us not having been born into riches have to deal with, what hardships are in our way, the obstacles in our collective path to get where we are now in our lives.
Those of us not lucky in our lives to be born into vast wealth are unable to attain wealth when born with preexisting conditions and disabilities. In fact, being born with those problems right out of the gate only makes life that much more difficult to achieve any measure of success.
I want to succeed in life, but my health issues stemming from birth are interfering with that quest. My dream, aside from having a normal vision left eye, is to be one of the best computer technicians out there in the field, a network security expert, and on the side being a hobbyist musician. I want to play the drums like my musical role model, Phil Collins, and I have taken lessons on the piano to learn to play some of my favorite songs of Phil Collins. I have also a guitar that I would someday like to learn to play, but unlike my abusive late father, I'm not what one might consider a “self taught” individual when it comes to instruments. I need music lessons with instructors, but that costs money, and if I cannot have the kind of career I dream of having due to my medical preexisting conditions and disabilities, I won't have my side hobby become a reality. And in turn, all of my hopes and dreams will be lost.
I'm tired of being a reclusive introvert. I don't like my picture being taken, I don't like being around a room full of people I don't know (that's part of the PTSD that my therapist believes I have), and I do not enjoy having a cramped space to live in by being confined to an apartment. Part of that dream of being in information technology and network/cyber security is to have a modest size house. Nothing big and fancy, but enough room to be able to do my work in, and also partake in my musical hobbies and ambitions.
Though I can't do it if I can't pay for things like my doctor bills, my treatments and exams, tests, and of course my medications. I can't do those things if I'm not able to afford a house, or have the kind of career my talents are suited for.
Even social programs designed to get people like myself into therapeutic treatments to relieve anxiety are often out of reach when I am constantly playing catch up with my aforementioned expenses both personal and for my medical treatments with my numerous doctors working with me.
I would love to be able to pay for a physical trainer to help coach me on how best to approach exercise to alleviate some of the chronic pain I experience regularly, but again, paying for doctor bills must come first. And by the time I'm done paying even partial payments, I have often little left over for food, supplies, medications, and the occasional entertainment indulgence. Because being stuck inside is terrible on its own, but having entertainment to help cope with my chronic pain, my disabilities, and even my preexisting conditions is better than being stir crazy and unable to express my emotions as I deal with all of what I have mentioned.
I hope this helps people like you to understand that not everyone can hold a job, especially when their disabilities and preexisting conditions are not “fake”, and interfere with being able to work and hold a job at all.
Sincerely,
~Jeffrey R. Kuntzelman 2017 “Your bark is only as good as your bite. BITE HARD!” ~JRK 2004
Tuesday, June 13, 2017
Who is your personal favorite fictional hero?
At one point, I did seriously consider suicide at age 11 years old. It was because of my meeting a certain young girl the following year that I put aside that thought temporarily. Though, it still plagued my mind often when I was facing harassment at school, abuse at home, and having many medical problems prompting my visits to various and numerous doctors, mostly about my blind eye. It became overwhelming at times, and I think in a way, I had to grow up exponentially because of that. And that's where music became my escape hatch. After 1993, and rediscovering the music of Phil Collins, my life became somewhat tolerable. I still faced much harassment at school, having teachers and "counselors" not really getting it with why I wasn't doing my school work, and my parents going through a bitter divorce, even though the marriage between them had been chaotic, abusive, and sometimes violent. It was only until I got into high school (9th through 12th grade) that the abuse and violent interaction between the four of us (myself, my older brother, my mother, and my late father) seemed to decrease significantly. I think much of it was due to my brother and I reaching ages where we knew we could call police if it became a matter of life and death.
And his speeches... Oh my goodness, his speeches were well written by the show writers, but he delivered them in such a way that they had a very profound impact on fans who were paying attention. I believe there is a difference of types of fans. There are the group of fans that are into the "pew pew pew pew pew pew" action of Star Trek, and then there are groups of fans like myself who look at all sides of the show. The philosophy, the ethics and morals, the interpersonal relationships between the characters, the purpose of the "United Federation of Planets", and to a lesser extent its exploration fleet called "Starfleet". The fans like myself who understand that Starfleet's primary mission, its standing orders were exploration. Only when it became necessary, and only as a last resort, would a ship defend itself in battle. There was almost no "first strike" kind of offensive action taken by any Star Trek captain. Well, maybe except for Kirk. But that's another story for another time. The picture below is from the episode "The Drumhead", season 4, "Star Trek: The Next Generation":
Then, for me, there was Lieutenant J.G. / Lieutenant / Lieutenant Commander Geordi La Forge played by LeVar Burton. Born on Earth in Africa (I forget where exactly) with blindness in both eyes. This character is what piqued my interest because I was also born with a vision impairment. He was born completely blind, while I was born blind in only one of my eyes due to a birth defect, but he still was my inspiration. He went from being a junior officer helmsman of the Enterprise NCC-1701-D, to being the ship's Chief Engineer.
Those are my fictional heroes! They are the ones that shaped my life into the sympathetic person I am today. I can be an asshole if I need to, but not the kind of asshole who judges people. Unless that person is willfully ignorant, stubborn, and unwilling to see another point of view because their minds are made up, and short of an act of God will they be ever convinced that another possibility exists.
There are, though, other types of role models. For example, one of my favorite musicians happens to be as I said earlier, Phil Collins! A talented musician who writes his own music, plays his own music instruments including the drums (as most of us know), and has given us such classics as "One More Night", "Sussudio", "Do You Remember?", "Another Day In Paradise", and my personal favorite "Take Me Home".








